Autism spectrum disorder (ASD) refers to a range of conditions characterized by challenges with social skills, repetitive behaviors, speech and nonverbal communication. Autism affects information processing in the brain which can make daily life more difficult for people with ASD.
While there is no cure for autism, various treatments, interventions, supportive services and coping strategies can help people with ASD thrive and live life to the fullest potential. In addition, people with ASD may be eligible for financial assistance through government benefit programs or other resources.
Do people with autism get disability benefits?
Yes, many people with autism do qualify for disability benefits through government programs like:
- Supplemental Security Income (SSI)
- Social Security Disability Insurance (SSDI)
- Medicaid
- Medicare
These programs provide cash assistance and healthcare coverage to help offset the costs and challenges associated with living with autism. Eligibility is based on each program’s criteria, but generally individuals must meet the Social Security Administration’s definition of disability and demonstrate significant functional limitations related to their autism.
SSI vs SSDI
SSI and SSDI are two major disability programs people with autism may qualify for. Here is a comparison:
| SSI | SSDI |
|---|---|
| Needs-based program that considers income and assets | Earned benefit based on prior work history and payroll taxes paid |
| Pays a monthly cash benefit to disabled adults and children | Pays a monthly cash benefit to disabled adults (over 18) |
| No prior work history required | Requires sufficient work history and contributions to Social Security |
So in summary: SSI focuses on financial need, while SSDI depends on your work history.
What are the disability criteria for autism benefits?
To qualify for disability benefits based on autism, the Social Security Administration requires you to meet the following criteria:
- A diagnosis of autism spectrum disorder from a licensed physician or psychologist
- Autism symptoms began during childhood (before age 22)
- Symptoms result in significant functional limitations in two or more “areas of major life activity”
- Inability to sustain substantial gainful employment due to autism impairments
“Areas of major life activity” include communication, social interaction, self-care, learning, concentrating, thinking, and controlling behaviors. So individuals must show how autism substantially limits functioning in two or more of these realms.
It’s also important to understand that autism exists on a spectrum – some people have milder forms while others face more significant challenges. The severity of limitations, not just the diagnosis itself, determines benefits eligibility.
Common autism-related limitations
Here are some examples of major functional limitations often seen with autism that can impact daily activities and ability to work:
- Challenges with communication, speech and language
- Difficulty establishing and maintaining social interactions
- Repetitive behaviors, rigid thinking, need for structure and routine
- Sensory issues like sensitivity to light, textures or sounds
- Anxiety, emotional regulation issues
- Problems with focus, organization and time management
Documentation from doctors, therapists, teachers or others familiar with the individual’s limitations is crucial when applying for disability benefits.
How much money can you get for autism disability?
Benefit amounts vary depending on the program and other factors like family income and living situation. Here’s an overview of average autism disability payment ranges:
| Program | Monthly Payment |
|---|---|
| SSI | $750 average for individuals $1,125 max for couples |
| SSDI | $800 average for individuals |
| Medicaid & Medicare | Varies – covers medical costs |
Besides monthly cash assistance, Medicaid and Medicare provide crucial health insurance. And recipients under age 18 may be eligible for Social Security child benefits worth up to 50% of a parent’s SSDI amount.
Additional financial help
Along with disability benefits, people with autism may qualify for other assistance programs like:
- Housing assistance such as Section 8 housing vouchers
- Supplemental Nutrition Assistance Program (SNAP or food stamps)
- Special education services in public schools
- Vocational rehabilitation programs
- Tax credits, deductions, ABLE savings accounts
- Local autism financial aid programs
Support groups like the Autism Society maintain directories of state-by-state resources available for individuals and families affected by autism.
What about Getting Paid for Being Autistic?
While disability benefits compensate for difficulties or lost income due to autism, some initiatives actually pay people specifically for being autistic and sharing their perspectives and talents.
For example, companies are beginning to hire consultants to provide feedback on products and services based on their experiences as autistic consumers. This helps identify aspects that may be confusing or overwhelming so improvements can be made.
Additionally, autistic speakers and trainers are paid to educate businesses and the public about autism. They provide valuable insights that challenge misconceptions and promote inclusion.
So in certain contexts, people on the spectrum can in fact get paid directly for their autism-related abilities and viewpoints rather than just disability benefits.
Employment challenges
These types of opportunities are still relatively rare. Many autistic adults struggle to find and maintain mainstream jobs:
- 85% unemployment rate among college grads with autism
- 53% underemployed in jobs beneath skill levels
- Major obstacles: interviews, workplace environments, discrimination
Specialized employment programs, supported employment services, vocational rehab and businesses intentionally recruiting autistic workers can help improve outcomes.
Applying for Autism Disability Benefits
The process for qualifying for SSI, SSDI and other government disability programs can be complex and lengthy. Many applications get denied initially and need to go through appeals. Working with a disability lawyer to prepare the strongest case improves your chances of approval.
Key tips for pursuing disability benefits for autism:
- Get an official ASD diagnosis from a qualified professional
- Document symptoms and limitations
- Secure medical records, school records, test results
- Obtain evaluation letters from treating physicians, therapists etc.
- Hire a lawyer experienced with autism disability claims
- Appeal if initially denied and expect a lengthy process
Patience and persistence are vital, but the financial support and security make it worthwhile for those who meet eligibility criteria and desperately need the assistance.
Conclusion
Autism is a complex spectrum of disorders impacting communication, social interaction, behavior and other realms of functioning. While there is no cure, supports like speech therapy, social skills training and medication management can help people manage challenges.
In addition, government disability benefits provide cash payments and healthcare coverage to support those significantly impacted in their ability to work and live independently. Programs like SSI, SSDI, Medicaid and Medicare offer crucial financial assistance if individuals can demonstrate substantial functional limitations attributable to their autism.
Besides disability benefits, specialized employment opportunities, housing help, and other resources may also be available. With proper treatment and support, people with autism have the potential to enrich our communities and lead fulfilling lives.